May 20: New Slide Order

 

Age 5:

Start narrative

Elementary school

Hands shaking

Writing and using a pencil

What is essential tremor (ET)?:

Movement disorder that causes shaking of the hands, head, trunk, legs, or voice

Progressive movement disorder:

Starts in 40s and 50s, but starts as early as birth

Who does ET affect?:

Age 14:

1 in 10 million people

Medicinal treatments for ET:

Beta blockers

Anti seizure

Anti Anxiety

Miscellaneous Treatments:

Wine and the bounce back effect

International Essential Tremor Foundation (IETF) Online Resources:

Essential tremor. Org (IETF)

YouTube (IETF)

Tremor Gram (IETF) News

Tremor Talk as a (blog and magazine)

Essential Tremor Seminars:

Going to two:

One in Los Angeles hosted by Cedar Sinai

Second one in San Diego hosted by UCSD Health System

Technology:

Lift Ware (Spoon)

ET phone app

Lift Pulse (phone app)

Coping Methods:

Weighted utensils

Weighted pencils/pens

Social media ET pages:

Facebook

Twitter

Google Plus

Trombone and tremor:

Why is shaking? Is she okay

Essential Tremor Expo:

Haven’t been, but just more options

Ways to connect to the IETF:

IETF website

IETF blog

Facebook

Google Plus

Youtube

Twitter

Support Groups:

San Diego Essential Tremor

Going to my first support group meeting

Becoming a support group leader:

Comm. And community and meeting Carolina for group project

Staying after and talking to her about ideas for support group

Essential Tremor Awareness month:

The walk and raising awareness by writing papers, talking about it in class, and creating a blog

Surgical treatment options for ET:

Deep brain stimulation

Evasive

Expensive

Steps are meticulous

Age 24:

Shadowing Carolina to learn to become a support group leader

Doing an internship with Carolina through the IETF that will allow me to plan an event and email doctors and other medical professionals to come to the support group meetings